Monday, April 15, 2019

Elle Update: 5 days and counting at home!

Hey everyone!  I thought I'd pop in and update y'all on Elle since we've been at home.

Overall, her lungs have improved everyday.  She still has a bit of a productive cough, but her lungs sound great and the junk she is coughing up is decreasing.

She woke up Friday with her nose pretty congested but it hasn't developed into anything more than that (and she sounds better today)...except that she has apparently passed it along to me.  I think all the stress and sleepless nights are finally catching up to me and I'm fighting a cold.  It's not horrible but I just feel so, so sleepy and run-down.

Fortunately, everyone else is healthy!  We gotta get healthy and stay healthy because we have another big weekend coming up.  It is Easter weekend and it is also Elle's 7th birthday Saturday!!  Make-a-Wish is throwing her a mega birthday party Saturday and we are so excited about it! (Thank you to Make-a-Wish and all you are doing to pull this off!)

So Elle went to school today - first day back in over 2 weeks.  She was tired but wasn't fussy when I dropped her off so I think she was glad to get back to school.  She has her infusion tomorrow and then a day of rest at home Wednesday.  Friday is a holiday, so she will only go to school a couple of days this week which works out to kind of ease her back in to her schedule.

She is definitely weaker overall than before she got sick.  She is eating well (the action of eating) but she has a significantly decreased appetite.  Her antibiotic finished yesterday which may very well have been affecting her appetite, so we will see if her eating picks up as the week goes on.  She had a couple of days of increased seizure activity but we adjusted one of her meds and that seemed to do the trick to bring the seizures back under control relatively speaking.  She's had a few frustrating and/or upsetting moments this weekend but mostly she has been giggly and happy...for this, we are so very grateful.  

Our weekend night nurse position is still not filled and our substitute nurse didn't show up this weekend - please pray that this gets resolved quickly.  We have been waiting on this position to be filled since January.  (Speaking of, my brain is ultra-fuzzy these days, so please excuse any nonsense in this update!)

As we are moving through each day and all the details and exhaustion that come with each day, it is super hard for me to be able to stop and remember this sacred thing we are celebrating this week.  Please remember with me, that Jesus came as one of us, suffered all that we could ever suffer, died so that we can be with Him forever, and rose from the dead.  He is risen!!  We love because He first loved us...with the truest love...Jesus gave His life so that we may live.  May this truth imbed itself on our hearts today and everyday.  May we, in turn, love and serve each other today and everyday.

Much love to you!
Dana

9 comments:

  1. Cannot wait to meet you all Friday, Teri with MAW!

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