Elle's port site is still looking great and healing well. She had a drop seizure Friday morning that threw her into a door frame and she had to get a couple of stitches on her forehead. Her seizures are just so frequent - almost constantly - and the past couple of days have been very difficult for her. She has been inconsolable and so irritable. Much of the time, she doesn't even know what she wants. Also, her walking has declined again. We are hoping and praying that another dose of enzymes will help boost her...we are cautiously optimistic as we saw some little improvements after her last infusion.
Ann Carlyle is doing well. No big changes with Milla this week. We are all still healthy! We are still utterly exhausted as our night help has been inconsistent at best this week. Please continue to pray for this issue.