We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (10yrs), Milla & Elle. In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla had Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016. She was 6 years old. Elle passed away May 4, 2019. She was 7 years old.
Tuesday, May 8, 2018
Surgery Bumped
Hey everyone - I just wanted to let everyone know that due to an emergency that came up, Elle's surgery was bumped to tomorrow at 2:30.
Please continue to pray for her and that she will have patience and understanding as much as she possibly can tomorrow! And of course for safety and her doctors and nurses, etc.
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