We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (8 yrs), Milla & Elle (5 yrs). In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla has Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016, just 3 weeks after her 6th birthday.
Monday, May 1, 2017
Elle's enzyme medication has been approved by the FDA!! http://www.commercialappeal.com/story/news/health/2017/04/28/fda-action-buoys-memphis-family-battling-brain-disease/101021776/