We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (10yrs), Milla & Elle. In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla had Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016. She was 6 years old. Elle passed away May 4, 2019. She was 7 years old.
Sunday, February 15, 2015
We are Home!!
We got home around noon yesterday. Milla is still hurting a bit and sleepy but she's doing great otherwise!
Meg's newsletter arrived today in my mailbox. Your family's journey has brought me to my knees and I will be praying for you so much in Nashville!!!! I do not have words...., but I can pray for God's mercy, provisions, strength, comfort, healing, etc... Juli.
Meg's newsletter arrived today in my mailbox. Your family's journey has brought me to my knees and I will be praying for you so much in Nashville!!!! I do not have words...., but I can pray for God's mercy, provisions, strength, comfort, healing, etc...
ReplyDeleteJuli.
Greeat share
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