She had a great night last night and was looking good this morning so they said, let's take that breathing tube out at 1:00 and so they did. It's been about 8 hours and she is flying steady. She started having a bit of a tough time at one point this afternoon but after some very.very intense breathing treatments (that she will continue to get every 4-6hrs), she started looking way better. Then tonight she had a small choking and coughing episode but she recovered with some suction and sitting her up and since then has done just great.
She is on a high-flow binasal cannula that pushes air into her nose to give her a little boost as her lungs are still trying to heal. She will continue to get the intense breathing treatments as long as she needs them. They are really awful to watch but they work. And if it keeps her off the vent, then we are all for it.
She spiked a rather high fever just an hour after her ET (breathing) tube came out, which caught everyone by surprise. We finally got it down after a few rounds of meds and making the room frigid and she has been acting like Elle-belle. :) So we are keeping a close eye on her of course but are so hopeful tonight.
She has looooved having that ET tube out. She is trying to sit up and is laughing and playing and being silly and trying so hard to talk. Her vocal cords aren't working quite yet but she is mouthing the words and doing such a good job! Honestly, I didn't know what things would look like on this side of things, and while she is still very weak and can't eat yet, we are seeing all so many of her usual mannerisms and she seems mentally to be back where she was before getting sick.
One hard thing is that her vision is gone. She has had very bad vision for awhile now and we could tell she was losing even more of her vision pretty rapidly the past month or so, and it seems she has pretty much lost all of it at this point. There are times she startles easily and sometimes I think she is trying so hard to search for and see something. She will adapt and be okay, but I hate seeing her struggle.
She also is on 4 rounds of a steroid to help her lungs out and this makes her shake uncontrollably and get restless and aggressive and just amped up. This is not fun. I will be glad to have that gone tomorrow.
All in all, she is doing really, really well and we are so thrilled! Maybe we will get to move to a step-down unit this weekend, but we will probably still be here in the hospital for a few more days.
On a different note, Ann Carlyle has performed her school musical, Beauty and the Beast, 3 times now and still has 2 more performances to go tomorrow! It will be a busy and awesome day for our birthday girl with many surprises from us and many more from so many of you!! Thank you so much for showing her so much love and care.
I was supposed to go to the play tonight but had to stay with Elle in light of today's activities...but by all accounts, it is awesome! She plays a villager/servant and I am hearing from multiple sources that she is a dedicated actress. :) I am planning on going tomorrow to see her. I love it so much because she loves it so much.
The busy-ness factor has increased greatly since we have our wild-child back at it so I gotta go. Much love!!!!
Dana
i want to tell the world about the great and mighty spell caster called Dr .osofo my husband was cheating on me and no longer committed to me and our kids when i asked him what the problem was he told me he has fell out of love for me and wanted a divorce i was so heart broken i cried all day and night but he left home i was looking for something online when i saw an article how the great and powerful Dr osofo have helped so many in similar situation like mine he email address was there so i sent him an email telling him about my problem he told me he shall return back to me within 48hrs i did everything he asked me to do the nest day to my greatest surprise my husband came back home and was crying and begging for me to forgive and accept him back he can also help you contact him on Email ( osofo.48hoursolutioncenter@gmail.com )
ReplyDeletewhasAPP him +2349065749952
Greatest thanks to Dr Oyagu for his herbal drugs that he prepared for me and when i start using it in just 2weeks i was completely cured and that ended my HERPES SIMPLEX 1&2 DISEASE i am so happy and grateful to Dr Oyagu . after reading about him on a testimony of Jason Cash on a blogger. i knew suddenly Dr Oyagu was the right Doctor to cure my HERPES SIMPLEX 1&2 DISEASE. i discuss with Dr Oyagu and he prepared a herbal medicine for me and when it got sent to me in south korean . i used the herbal medicine and 2weeks and i went to check up again. after 15years of suffering from HERPES SIMPLEX 1&2 at last i am smiling once again. Dr Oyagu also has remedy to others disease like COLD SORES,HIV/AIDS,DIABETES.CANCER,HIGH BLOOD PRESSURE AND MANY MORE. I oblige everyone to contact this powerful herbalist Dr Oyagu and be free from your suffering. contact his WhatsApp line: +2348101755322 or his Email:Oyaguherbalhome@gmail.com
ReplyDeleteMy name is Mrs Aisha Mohamed, am a Citizen Of Qatar.Have you been looking for a loan?Do you need an urgent personal loan or business loan?contact Dr James Eric Finance Home he help me with a loan of $42,000 some days ago after been scammed of $2,800 from a woman claiming to been a loan lender but i thank God today that i got my loan worth $42,000.Feel free to contact the company for a genuine financial service. Email:(financialserviceoffer876@gmail.com) call/whats-App Contact Number +918929509036
ReplyDeleteGood luck to anyone reading this true life story of mine, my husband left me to suffer alone because he found that i had herpes, and i know i was wrong because i kept it from him and never told him about my virus, He found out anyways and left home angrily and blocked all means i could reach him with, i felt horrible because he don't deserve that because i had been with him for 4 years and he is a very honest man, after one month of no response from Jerry i got depressed and started searching for solution,One faithful morning a came across a website where ladies has gotten the best of marriages with a doctor call Dr. Kham , he is an expert when it comes to curing you and casting a very powerful love spell to keep relationship/marriage in good and happy shape, I can tell Y'ALL that Dr. Kham cured me from herpes virus in three weeks of his medication , after that he made a love spell for my husband to come back home after 48 hours of his spell and same Dr. Kham also cured my husband exactly with the procedure he used to cure me, am a happy woman and i will never forget to share Dr. Kham good reviews because he is 100^% reliable contact him now via Email: dr.khamcaregiver@gmail.com Phone/WhatsApp: +2348159922297 or you can visit his website: https://drkhamcaregiver.wixsite.com/drkhamcaregiverherba for more information
ReplyDeleteA GREAT SPELL CASTER (DR. EMU) THAT HELP ME BRING BACK MY EX GIRLFRIEND.
ReplyDeleteAm so happy to testify about a great spell caster that helped me when all hope was lost for me to unite with my ex-girlfriend that I love so much. I had a girlfriend that love me so much but something terrible happen to our relationship one afternoon when her friend that was always trying to get to me was trying to force me to make love to her just because she was been jealous of her friend that i was dating and on the scene my girlfriend just walk in and she thought we had something special doing together, i tried to explain things to her that her friend always do this whenever she is not with me and i always refuse her but i never told her because i did not want the both of them to be enemies to each other but she never believed me. She broke up with me and I tried times without numbers to make her believe me but she never believed me until one day i heard about the DR. EMU and I emailed him and he replied to me so kindly and helped me get back my lovely relationship that was already gone for two months.
Email him at: Emutemple@gmail.com
Call or Whats-app him: +2347012841542