The Gieselmann5

We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (10yrs), Milla & Elle. In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla had Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016. She was 6 years old. Elle passed away May 4, 2019. She was 7 years old.

Wednesday, September 27, 2017

Elle's Surgery Update

Rough night. Elle had lots of breakthrough pain, a little fever, heart rate up, o2 sat fell for just a bit so she had to have some binasal oxygen for a few hours. She's off it now and her heart rate is still a bit high (130s). Fever is down. She just ate a little and drank a little. 👍🏼So she's doing ok but jury is out on discharge plans.

(Lots of rational and 'ok' reasons for all these things but keeping a close eye on her.)

1 comment:

UnknownSeptember 29, 2017 at 11:01 PM
Praying for Elle and you guys nightly... Yep, your brifhy pink Post-It-Note AND family pic on our mirror ensures you're never out of sight, mind & heart for very long!
Holy Hugs & Persistant 'Importunate Widow-Type" prayers...like RIGHT NOW!
"Lord,Jesus,we are powerless! PLEASE heal your dear, sweet Elle for your tender mercies' sake!"
Johnny & Becky
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