We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (10yrs), Milla & Elle. In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla had Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016. She was 6 years old. Elle passed away May 4, 2019. She was 7 years old.
Friday, March 17, 2017
Frazer wrote an article...Check it out if you can :)
My daughter is fighting a rare disease. A ‘streamlined’ FDA won’t help her
Praying for you always.
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