The Gieselmann5

We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (10yrs), Milla & Elle. In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla had Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016. She was 6 years old. Elle passed away May 4, 2019. She was 7 years old.

Thursday, April 16, 2015

Home!

We are home!

No breaking news for Elle - she didn't have any seizures while at LeBonheur and we are hopeful that is because her medicine is at the right levels.

Milla's congestion is a bit better and she was much perkier today.

Thank you all so much for your prayers, for your encouraging words, for sending God's Word to speak peace into my soul.

We are pretty exhausted tonight but thankful to be home with our girls and anxious to get back into our 'routine.'

Please continue to pray that Milla's congestion clears up with no complications.

Much love!

Dana

Here's an attempt to capture Elle's awesome post-EEG hair. :)

1 comment:

Katie HobsonApril 18, 2015 at 2:13 PM
a friend of Catherine Norman's... praying continually for your family. much love, in Christ.
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