The Gieselmann5

We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (10yrs), Milla & Elle. In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla had Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016. She was 6 years old. Elle passed away May 4, 2019. She was 7 years old.

Sunday, June 29, 2014

Can y'all believe it's almost July?!

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So it's been a busy week and an exhausting week, but we've made it through to the other side.  I have to discipline myself to take ...
Wednesday, June 25, 2014

A Note from Frazer

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I wanted to write and attempt to express my appreciation for the love and care you have shown and are showing our family.  Since we first e...
Tuesday, June 17, 2014

[Insert creative title here] - All I got is 'Update'

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Hello everyone!  It's been a busy week and it's been hard to find time to sit and write an update. Nothing much has changed...Milla ...
Tuesday, June 10, 2014

Thank you

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So, first of all, I don't really know where to start. :) There has been an absolute OUTPOURING of love and help from so many of you ...
Sunday, June 8, 2014

Prayers

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Dear friends and family - I know you have been so faithful to pray for Milla and all of us - please continue. While Milla is eating and ...
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Saturday, June 7, 2014

Going Home!!!

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Praise the Lord - we are going home today!!! And while this is certainly good news, we are hoping it is the right decision.  Milla is st...
1 comment:
Friday, June 6, 2014

LeBonheur - Days 3 & 4

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Hey y'all - it's been hard to write an update yesterday and today.  And I'll have to be brief this afternoon, if I can. So,...
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