The Gieselmann5

We are Frazer & Dana Gieselmann - we have 3 girls, Ann Carlyle (10yrs), Milla & Elle. In Aug 2013, Milla had her first seizure just before turning 3yrs old. We started this blog primarily to give updates on Milla's condition. In Oct 2014, we learned that Milla had Batten Disease, a rare & fatal brain disease. A few weeks later, we learned that Elle also has this disease. Milla passed away Nov 26, 2016. She was 6 years old. Elle passed away May 4, 2019. She was 7 years old.

Thursday, August 28, 2014

Discouraging News

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Hey y'all - so I found out yesterday that Milla's blood was never sent out for that genetic test we've been waiting on for 3 mon...
Monday, August 25, 2014

Eeeek! It's been a pretty long time since I've sent an update!!

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Thank you for being so faithful to pray in spite of the lack of updates! As always, my excuse is crazy busy times at the Gieselmann hous...
Monday, August 11, 2014

Tough Week

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Thank y'all for all the prayers and checking in with us to see how we are doing this week!  It is so encouraging to know that we are not...
Thursday, July 31, 2014

Just When I Thought Life Couldn't Get Any Crazier...

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Life seems to get crazier by the minute around here! We still don't have the house on the market, but we are close!  We still have s...
Monday, July 21, 2014

Milla-willa, new house, old house, lots going on!

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Hey there, friends and family!  So we just keep on keepin' on...crazy busy but hanging in there. Thank you for your prayers for the ...
Sunday, July 13, 2014

Update - It's a Good One!!!!

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Hello!  Thank y'all so, so much for your prayers last week as we got in to see Milla's doctor.  It's been an insanely crazy week...
Tuesday, July 8, 2014

We Got In!

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I just wanted y'all to know that we got that appointment with Milla's doctor Wednesday!!  Praise the Lord!!
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