Happy Thanksgiving Week

Quick update from Frazer:

As our family is plugging through November with many mixed emotions, we wanted to share a few things briefly with all of you:

1. If any of you have 40 minutes and would love to hear one of our favorite interviews, please take the time to listen to this piece. It is very well done and tells a larger part of our family’s story and history than just Battens.

http://www.ouramericannetwork.org/story?title=Five-Gieselmanns-vs-One-Rare-Fatal-Brain-Disease

2.  As you will remember, Dana and I were able to go to California for a few nights in August. The trip was amazing on many levels. The main reason for the trip was to see the premiere of The Race for Brineura which BioMarin put together. It is amazing and was released to the public last week!  It’s about 30 minutes long and amazingly well done!  Elle is in it also and the movie really captures the essence and heart of BioMarin’s passion for their work.

https://m.youtube.com/watch?v=rAiXhodaar0

3.  We are working to get a head start on planning for the 2nd annual Miles 4 Milla’s House which will be on May 19, 2018 at Wiseacre Brewing Company.  Last year was a huge success and we got it together in less than 60 days!  Since we have more time, we are working to gather sponsors. If you or someone you know would be interested in sponsoring the 2018 event in May, please email Frazer at millashouse1@gmail.com.

We hope you all have a wonderful Thanksgiving and we greatly appreciate your prayers and support that you continue to pour out on us, especially during this difficult holiday season without our Milla-Willa.

Fraze and Dana

Infusion Day and 15th Anniversary!

Infusion 31 and our 15th wedding anniversary today! Last year on this day I was actually at LeBonheur with Milla and Frazer was in Ohio with Elle and Ann Carlyle was staying with family. It was a hard day. A hard week, a hard month, a hard season, a hard year, I could go on and on. It’s still really, really hard. But I’m finding myself thankful too that we are able to be in Memphis together this year and that Milla is with Jesus. My heart feels swollen with love and it feels achy and heavy and broken. Where would I be without my God? He loves us so much. Y’all - bind your heart to His - sit in His love. Praise God He has already bound you to Himself.